Today the Guardian published an article on the new Social Care Institute for Excellence (SCIE) guide on transitioning from child to adult mental health services. The guide outlines the importance of planning for the transition at least six months before the transition is made, and that the age of transitioning from child and adolescent mental health services (CAMHS) to adult services has been raised from 17 to 18.
The guide emphasises that the young people need to be fully involved in all aspects of their transition, and their wider needs also incorporated- such as school, family, friends, housing and so on.
Adolescence is a tricky enough time without the added complexities of a mental health problem, and it is vital that the young person receives continued support from their designated mental health worker to ensure that they do not get ‘lost’ in the system, or disengage entirely from mental health services.
The main principle of the SCIE’s guide is that the transition should be “a flexible, managed process, with planning and assessments, continuity of care and follow-up. A period of shared or parallel care is good practice.”
All of this sounds excellent in theory, but my experience is an entirely different matter.
I was involved with CAMHS from the ages of 15 to 17. Unfortunately I did not build up a rapport with my key worker and no real progress was made on either of our parts. In my personal opinion, the psychiatrist I saw there did not listen to what I had to say and instead relied entirely on the opinion of my mother (subsequent assessments from other psychiatrists proved me correct) and so I was effectively discharged from CAMHS with a suggestion to try counselling, in a place I could not travel to, and even if I could, it would have interfered with my A levels.
What followed was nothing like the transition that SCIE are outlining. In the space of a few months after being discharged from CAMHS, I found myself in an adult acute mental health ward, feeling lost, scared and bewildered. I was 17 years old. I had no key worker from the adult services, I did not like my new psychiatrist and the average age of the patients on the adult ward was around 45.
Where was my flexible, managed process? Where was the planning and the continuity of care? I was allowed to slip through the cracks of the system. At 17 I had no idea that the Patient Advice and Liaison Service (PALs) existed, or an advocacy service. I did not know that I was entitled to a second opinion from another psychiatrist. Nothing was explained to me and so I could not have a proper say in my care. To my knowledge, during my time at CAMHs, I never even had a care plan. Most of my sessions took place with my entire family present and so I did not have an outlet to vent my feelings privately.
I was, after two weeks, transferred from the adult ward in south east Essex to an adolescent ward in London. It was less frightening, but also managed to remove me from my home town and place me in the centre of London, where I knew no-one and my family found it much harder and time consuming to visit me.
I also went from being the youngest patient to the eldest patient. The adolescent ward had a school room and two teachers, during the day we had a number of classes to attend plus occupational and individual therapy. The problem was that most of the patients were still following the secondary school national curriculum or studying for their GCSEs whereas I was in my final year of A levels. There was not anything to stimulate me as the hospital school did not cater for patients doing their A levels. I felt very frustrated, and ultimately, bored.
It has been my feeling for a long while now that there needs to be more bridging services between CAMHS and adult services. Even transitioning at age 18 to adult services is scary, especially if you need to be hospitalised. I propose that there needs to be an intermediary service for 18-25 year olds, effectively drawing the transition out over seven years for those who need the sustained mental health input.
It would also help those patients who first become known to mental health services at 18, who have not had the benefit of CAMHS. Entering the mental health system is scary, no matter how old you are. You feel scared and frightened because of the symptoms you are experiencing, and then you have to see a bunch of strangers and explain to them in great detail the darker recesses of your mind. It is nerve wracking and exhausting. But it can put undue stress on you, if at the age of 17 or 18, your first experience of the mental health system is being surrounded with much older, acutely ill patients. An 18-25 year old service would eliminate that factor, not entirely, but as much as possible. It would ensure a smoother transition and a less frightening experience for those just entering the system.